Caring for your child and yourself

Support for parents and family members

Together for Short Lives' Family Support Hub have expanded their services.  They provide emotional support and practical advice, connecting families with other families and helping them access free legal support if needed.  Their helpline provides confidential help and support on a range of issues.     

The Therapy Directory promotes the benefits of complementary therapy and aims to give visitors to it's website all the information they need to help them make an informed decision about whether therapy would be right for them. The website has an FAQ's section, a number of useful articles written by their members and the facility to search for a practitioner in your area.

The Counselling Directory aims to connect those in distress with an informative support network in the UK, ensuring people find the right counsellor suited to their individual situation. Alongside detailed counsellor profile listings, they have various sections on the site such as types of therapy, topic pages, expert articles, recent news and local events.

Information on medicines, equipment providers, and sources of support

Medicines for children provides easily understandable information about medicines which may be prescribed for children. The fact sheets have been especially written especially for parents and carers of children. 

Please Take Me There is a UK charity that offers children with serious health conditions the chance to fly for free to medical appointments and treatment sessions.  Flights are conducted on a private aeroplane. Contact them at for more information or phone 01223 653133.


Action for Kids provides disabled children and young people up to the age of 26 with specialist mobility equipment. From simple trikes to sophisticated powered wheelchairs, most of their equipment is provided on a permanent loan scheme. 

Changing Places Toilets - provide toilets with space for two carers, adjustable changing benches, tracking hoist systems/mobile hoists, a screen for privacy, and non slip floor. Their web site provides details of where they are located.

Children Today provides specialised equipment and services for children and young people with disabilities in the UK.  Equipment can include wheelchairs, walking frames, hoists, tricycles, and other mobility aids.

Disability grants. This website was set up by the parent of a child with a disability and lists the many UK charities or trusts who provide grants. Grants can be searched for by age, ie. children and young people or by requirement, ie. equipment and assistive technology.

The Elifar Foundation is a small charity which helps to improve the lives of children and young adults with severe learning difficulty and associated physical disability. We provide grants for a variety of items including electronic wheelchairs, specialised seating, eating aids, special beds and trikes, hoists, communication devices, sensory equipment and specialist holidays. 

Fledglings is a national charity which aims to assist parents and carers of disabled children, or those with additional needs of any kind, by identifying, sourcing and supplying practical, affordable products to address every day issues.

Independence at Home provides grants to people of all ages who have a physical or learning disability or long term illness and need financial help towards the cost to improve your independence, comfort, safety and quality of life.

Lifeline 4 Kids is a UK national charity which provides equipment to children with disabilities and special needs. This includes electric wheelchairs, mobility aids and items such as specialised computers and sensory toys. Applications can be made directly by families. 

MERU designs and makes custom made disability products for children and young people with disabilities. They are designed and manufactured in-house by their engineers and volunteers in response to requests from families and therapists. They also have an equipment loan service.  They are part of the Queen Elizabeth's Foundation who offer a extensive range of services to support people with disabilities.

Mobility Trust provides powered wheelchairs to individuals of any age who cannot obtain one through statutory or other charitable means, with insurance, maintenance and servicing free of charge for the first two years.

Mobiloo is the world’s first attended mobile toilet service with hoist and changing bench, set up at venues and events across the country. An events calendar list all the events where a mobiloo is present

Newlife Foundation for Disabled Children. One of the leading UK's disabled children's charity, the charity provides a non means tested equipment grant service. The grants are open to benefit all seriously disabled and terminally ill children that are permanently resident in the UK and who are 18 years or under. Equipment, installation, training and maintenance is provided by the charity.

Newlife Foundation for Disabled Children - Just can't wait service. Launched in February 2011, the charity provides a priority equipment loan service from this charity to help children with terminal illness towards end of life . An occupational therapist, physiotherapist or any health professional involved in the child's end of life care can refer to this service and aims to have equipment in place within 72 hours. To access the service ring 0800 902 0095 to speak to a Newlife Nurse.

Parents of disabled children. This is a very active website and forum providing all kinds of support and practical information from parents on caring for their child with many posts on disability equipment. 

React - Rapid Effective Assistance for Children with Potentially Terminal illness works to improve the quality of life for financially disadvantaged children with life-limiting illnesses living in the UK. Assistance can range from providing specialist equipment, domestic equipment and UK based holidays in their mobile homes. In the past year they've supplied a wide range of equipment from specialist wheelchairs, beds, baths, and mobility aids, to essential everyday items like washing machines and tumble dryers.

Special Needs Kids is an information directory to help parents and carers of children with special needs. Their Special Needs Equipment guide provides a wide range of information on specialist furniture, seating, wheelchairs, beds, lifting aids, home fixtures and adaptations.

Try Fly Before You Fly is a service for children and adults with disabilities providing information about flying, and cabin assessments enabling them and their families to use various types of transfer and support equipment in an aircraft seat prior to flying. 

Variety - the Children's Charity provides wheelchairs and other mobility equipment. "On average they fund a wheelchair every six days for a child in the UK"

Well Child is a national charity for sick children. They're service Helping Hands offers practical support to sick children and their families through one off home improvement projects, such as a garden or bedroom makeover.

Whizz Kidz provides disabled children with a range of mobility equipment to help them be more independent at home, at school and at play. They have a growing network of local clubs and as well as providing equipment, provide wheelchair skills training and life skills training. Their aim is to provide disabled children with the essential wheelchairs and other mobility equipment they need to lead fun and active childhoods.

  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS


Church Lane, Milton,
Cambridge, CB24 6AB

The Nook

Pigot Lane, Framingham Earl
Norfolk, NR14 7PX