Hear from other families

Read below to find stories from families and their children and young people accessing our services. 
 
We are always looking for new stories to illustrate our services and the impact they have on families across East Anglia. If you'd like to share your story please get in touch with Michael Jarvis in our Marketing and Communications Team on michael.jarvis@each.org.uk.

Lucy J's Story

“Our princess Lucy gained her wings and Heaven gained the strongest angel. We cannot thank EACH enough for everything they have done for us.”

Lucy was just twelve years-old when she died. Lucy and her family used services at EACH throughout her short life. Her mum Sharon tells us Lucy’s story…

“At 12 weeks-old Lucy suffered a seizure. After a year of tests Lucy was diagnosed with Lennox-Gastaut Syndrome, a rare and severe type of epilepsy, global development delay and was registered blind. Finally getting a diagnosis was actually a relief – being able to see everything Lucy had been through written down in front of us.

“We were introduced to EACH when Lucy was a year-old. The hospice was nothing like we imagined, we were made to feel so welcome and there was such a fun and relaxed atmosphere. We felt at home there and it was a place we felt safe leaving Lucy to be cared for.

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“Over the years we used EACH for lots of services – short break care, Lucy had hydrotherapy sessions and we attended groups and family events. Hydrotherapy was so useful as it relaxed Lucy’s muscles and helped with her chest and breathing problems.

 “Sadly, in March, Lucy became incredibly unwell and we were told she needed end of life care. We went to the hospice to spend what time she had left together as a family. Milton was due to be closed for a week at the time, but there was no hesitation – they opened the doors for our whole family and friends so everyone had a chance to say goodbye to Lucy. Everyone was welcomed with a smile, supplied drinks and fed when they needed it.

“The wonderful staff, some of whom we’ve known for 10 years, cared for all of Lucy’s medical needs, so we could just focus on being mum and dad. The emotional support our whole family received is overwhelming.

“Sadly, our gorgeous little Princess Lucy gained her angel wings and Heaven gained the strongest little angel. We cannot thank EACH enough for everything they’ve done" 

  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS

Milton

Church Lane, Milton,
Cambridge, CB24 6AB

The Nook

Pigot Lane, Framingham Earl
Norfolk, NR14 7PX