Youngsters with the genetic condition muscular dystrophy came together for a fun-packed activity day.
The special event was organised by the physical therapies team at East Anglia’s Children’s Hospices’ (EACH) and held at The Nook.
Nine young people attended and enjoyed various activities, including arts and crafts. They worked individually and as a group, including joining forces to complete a giant jigsaw.
There were other games and a quiz, while the hospice’s new playground also proved popular.
Parents were invited to stay and everyone enjoyed lunch together in the dining room.
The event was organised by Clare Lindsay, an Occupational Therapist at The Nook.
She said: “It was a successful day and one that gave families and young people an opportunity to spend quality time together.
“In some cases, it was about reconnecting, having previously met at similar events.
“For others, it was a chance to meet for the first time, forge new friendships and let their confidence grow.
“It’s also a lovely way of bringing staff together and giving them an opportunity to develop their relationships with the children.
“We have lots of fun and everyone mucks in, which makes it a very special day.”
Among those to attend was 13-year-old Reece Stearman, who was diagnosed in October.
Mum Leah said: “It was the first time we’d been to one of these days and both of us really enjoyed it.
“I found it very informative and enjoyed the opportunity to talk to other mums in the same boat as me.
“Everyone was so friendly and welcoming and people make an effort to ask questions and talk to you, which they don’t have to.”
Another of those to enjoy the day was 15-year-old Freddie Fytche.
Mum Carmen said: “Freddie loves the opportunity to meet other boys with the same condition.
“It’s important for him and I enjoy it, too, because I’ve become friends with some of the other mums.
“We’ve been to a few of these days together and it’s something we always look forward to.”
The activity day took place on Thursday, 15th August.
The Nook team run three special muscular dystrophy days every year. The first was in February and there will be one more in the Autumn.
Pictures: Mila Sousa/EACH
