A fun-loving four-year-old with a rare genetic condition is set to take centre stage at a fundraising football match in Essex.
Leo Taylor has KCNB1, which causes seizures and developmental delay. He also suffers from epilepsy, mobility issues, hypotonia, low muscle tone, speech delay, sensory issues, sleep disturbances and excessive drooling.
He receives care from East Anglia’s Children’s Hospices (EACH) at The Treehouse, and now, as a way of showing her gratitude, mum Hannah is arranging the special ‘Leo’s Lions’ match at Halstead Town.
It is taking place on 7th September, and all money raised will be split between EACH and The Bumblebee Children’s Charity.
Hannah said: “Leo’s our little warrior and he loves football. His face lights up whenever it comes on the telly.
“That’s what gave us the idea to organise a fundraising match last year, and, thankfully, it proved a real success.
“We felt inspired to do it again, and, once again, we’re delighted to be supporting both EACH and The Bumblebee Children’s Charity.
“Both are amazing charities that have helped us so much.”
Entry is free, and the match is taking place at Halstead Town’s ground in Rosemary Lane. Gates will open at 11am, with the contest getting underway at 12pm.
Hot food will be available, and there will also be a licensed bar, raffle, games, cake stalls and other activities.
Leo was at The Treehouse when Ipswich Town footballers paid a visit last Christmas. He particularly enjoyed meeting midfielder Conor Chaplin.
“The Treehouse is a wonderful place, and it’s helped us so much,” added Hannah.
“It’s a safe space for us all, as a family.
“Leo has nocturnal epilepsy, and it means we’re up several times a night. A good night might mean three or four times, but a bad one can be up to 20.
“Having somewhere we can relax, unwind and recharge our batteries means the world.”
