A special support group helping parents and carers connect with others facing similar challenges continues to prove invaluable for families supported by East Anglia’s Children’s Hospices (EACH) at The Nook.
The monthly Monday Meet-Up sessions provide a welcoming space to share experiences, swap advice and enjoy time with people who understand their daily lives.
They are designed for parents and carers, as well as babies, pre-school children and young people unable to access school, and activities include sensory play, storytelling and themed experiences. Families can also occasionally access ad hoc music sessions with The Nook’s Music Therapist, Jane Rous-Milligan.
Mum Lindsay Gerrard says the biggest benefit is the sense of understanding and community the sessions provide.
Son James, 11, has early epileptic encephalopathy and has been supported by EACH since the charity was based at Quidenham.
Although he now attends the Clare School full-time, Lindsay continues attending Monday Meet-Ups and other events at The Nook with husband Lee and daughters Anna, 14, and Georgie, nine.
“I still come because it’s a great opportunity to catch up with friends – mums of other children receiving care at The Nook,” she said.
“From my point of view, it feels great to spend time with parents who understand and appreciate my situation.
“We’re in similar positions, so know what I’m talking about and are always on hand with support, advice and ideas.
“They share many of the same feelings, and it makes me feel better knowing I’m not the only one.
“We keep in touch aside from these sessions, but it’s always great to meet face to face and have a chat over a cup of tea.
“The Nook feels a safe space and somewhere we feel included. To me, it’s not a place of sadness, as some people may expect of a children’s hospice.”
Lindsay says her family also enjoy sibling days, groups and events, including summer barbecues and Winter Wonderland celebrations.
“As a family, we enjoy coming here,” she added.
“James is in a wheelchair so not everywhere is suitable, but here it’s fully accessible and a place we can all spend time together. It’s tailor-made for us.”
Another regular attendee is Mandi Piper. Son James, 13, has an undiagnosed genetic condition, and the family have been supported by EACH since the charity was based at Quidenham.
They continue to access services including short breaks, music therapy, hydrotherapy and the sensory room.
“We very much enjoy coming to the Monday Meet-Ups,” said Mandi.
“It’s such a welcoming environment and gives us somewhere positive to go.
“I’ve met some great people and become good friends with some of them.
“They’re in similar positions to me and it’s a great place for swapping tips and advice about things to do and places to visit. We also speak about practical things, like wheelchairs.
“Aside from other families, it’s also nice spending time with the staff. I’ve got to know a lot of them down the years and they’re great, kind and caring people.”
The sessions are run by Heidi Foster, EACH’s Play Specialist at The Nook. May’s event revolved around zoo animals.
“Our Monday Meet-Ups offer parents and carers understanding, reassurance and the chance to connect with people facing similar experiences,” she said.
“Caring for a child with complex needs can sometimes feel isolating, so having a safe, welcoming environment where families can relax, talk openly and support one another can make a huge difference.
“It’s wonderful to see the friendships and support networks that grow from these sessions.”
