Transition resources
We have gathered information to help you navigate the transition to adult services - we hope you find the below links and resources useful.
Together for Short Lives
Together for Short Lives have produced a number of guides to support young people with life-threatening health conditions as they transition from children’s to adult support services:
- Together for Short Lives - Moving to adult services - what to expect (PDF)
- Together for Short Lives - Family Factsheet - Transition to Adult Services (PDF)
- Together for Short Lives - a checklist to a good transition (PDF)
- Together for Short Lives - Young People's Guide to Personal Budgets in England (PDF)
There are also lots of useful links and resources on the Together for Short Lives website.
- You can find out how to get more involved in Together for Short Lives' Family Community, and have your say on important issues, here
- Together for Short Lives have an Advocacy Service which matches families with legally trained advocates who act on their behalf, assisting families with specific problems they may be facing. This service can help families access support they are entitled to whether that be housing adaptations or having the right care package in place
- They have also developed My Care Transfer - a quick and easy care planning tool for young people and their families
- Webinars - a series of one hour webinars on transition to adulthood for young people with life-limiting or life-threatening conditions, held by Together for Short Lives
Other resources
- NICE Guideline - Transition from children’s to adults’ services for young people using health or social care services (PDF)
- Personal health budgets and Integrated Personal Commissioning quick guide for children and young people (PDF)
- Bridging the Gap Toolkit (PDF)
- My Adult Still My Child - website for parents and carers of young people aged 16+ who may not be able to make decisions
- 10 Steps Transition - the 10 Steps Transition website has been developed by the transition team at Alder Hey Children’s NHS Foundation Trust. It provides accessible information about the transition process and links to useful tools and resources
- Open University Sexuality Alliance interactive resource - The Open University Sexuality Alliance has launched an interactive resource to support young adults with life-limiting conditions to talk about sex and relationships. Co-produced with a group of young adults, the resource includes short videos and a questionnaire
- Council for Disabled Children - the umbrella body for the disabled children's sector bringing together professionals, practitioners and policy-makers