Hear from other families

Read below to find stories from families and their children and young people accessing our services.

We are always looking for new stories to illustrate our services and the impact they have on families across East Anglia. If you'd like to share your story please get in touch with Michael Jarvis in our Marketing and Communications Team on michael.jarvis@each.org.uk.

Matilda's Story

Thirteen year-old Matilda Moxon lives in Plumstead, Norfolk with her mum Bella, dad Matt and sister, 14 year-old Maisie. The whole Moxon family have been using services at our Quidenham hospice since Matilda was four years-old.

Matilda has Mitochondrial Cytopathy Complex one and four. This means that her body does not have the energy required to develop properly therefore she requires 24 hour care to help with all her everyday needs. Matilda is unable to talk, or walk, she is unable to support her own weight and cannot feed herself. She also has daily seizures which are controlled with medication.

The whole Moxon family have used services through EACH. Matilda goes to Quidenham for overnight short break care, her sister Maisie attends sibling groups and the family attend EACH events and days out both at the hospice and in the community.

Bella Moxon, Matilda’s mum, explained: “Matilda has been visiting EACH at Quidenham since she was four.  She currently receives 14 over night stays a year at the hospice. When we drop her off for her stay we are confident that she will be well cared for and thoroughly enjoy her time there for her break.

“We have always felt so relaxed using the services EACH provides, even from our very first night when we all stayed together as a family, it felt very much like staying at someone’s home. We were relaxed and confident that Matilda would be happy there right from the beginning - Maisie still talks about our first stay there fondly.

“Matilda's stays at EACH are so important to us as they enables us to have time with Maisie where we can focus on her and also some time to ourselves. As a family we would find it very difficult providing the constant care Matilda needs without some sort of a break. Now she is older it becomes increasingly difficult to ask family members to help - EACH is a lifeline to us. We also have the added support of being able to talk to any of the staff at EACH if we need to.”

Matilda’s older sister Maisie really enjoys her time at EACH at sibling days and the whole family enjoys day trips organised by the Wellbeing Team. Most recently the Moxon family attended Dream Night at Colchester Zoo which was an evening specifically aimed at children’s hospice families. The zoo was closed to members of the general public giving families chance to have time together to enjoy a memorable evening in a less crowded environment, with special events put on to create a unique experience for families.

“Our visit to Colchester Zoo Dream Night was amazing, and where we realised how many families there are who need EACH. We had a very happy night feeding elephants, seeing Tigers and Matilda holding a Cockroach! Very special time spent together as a family where we could all relax.”

  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS

Milton

Church Lane, Milton,
Cambridge, CB24 6AB

Quidenham

Quidenham , Norwich,
Norfolk, NR16 2PH