Thirteen year-old Matilda Moxon lives in Plumstead, Norfolk with her mum Bella, dad Matt and sister, 14 year-old Maisie. The whole Moxon family have been using services at our Quidenham hospice since Matilda was four years-old.
Matilda has Mitochondrial Cytopathy Complex one and four. This means that her body does not have the energy required to develop properly therefore she requires 24 hour care to help with all her everyday needs. Matilda is unable to talk, or walk, she is unable to support her own weight and cannot feed herself. She also has daily seizures which are controlled with medication.
The whole Moxon family have used services through EACH. Matilda goes to Quidenham for overnight short break care, her sister Maisie attends sibling groups and the family attend EACH events and days out both at the hospice and in the community.
Bella Moxon, Matilda’s mum, explained: “Matilda has been visiting EACH at Quidenham since she was four. She currently receives 14 over night stays a year at the hospice. When we drop her off for her stay we are confident that she will be well cared for and thoroughly enjoy her time there for her break.
“We have always felt so relaxed using the services EACH provides, even from our very first night when we all stayed together as a family, it felt very much like staying at someone’s home. We were relaxed and confident that Matilda would be happy there right from the beginning - Maisie still talks about our first stay there fondly.
“Matilda's stays at EACH are so important to us as they enables us to have time with Maisie where we can focus on her and also some time to ourselves. As a family we would find it very difficult providing the constant care Matilda needs without some sort of a break. Now she is older it becomes increasingly difficult to ask family members to help - EACH is a lifeline to us. We also have the added support of being able to talk to any of the staff at EACH if we need to.”
Matilda’s older sister Maisie really enjoys her time at EACH at sibling days and the whole family enjoys day trips organised by the Wellbeing Team. Most recently the Moxon family attended Dream Night at Colchester Zoo which was an evening specifically aimed at children’s hospice families. The zoo was closed to members of the general public giving families chance to have time together to enjoy a memorable evening in a less crowded environment, with special events put on to create a unique experience for families.
“Our visit to Colchester Zoo Dream Night was amazing, and where we realised how many families there are who need EACH. We had a very happy night feeding elephants, seeing Tigers and Matilda holding a Cockroach! Very special time spent together as a family where we could all relax.”