The Morley’s, like many families, have been isolating to protect their son Euan. During this time at home, they also decided to take on a mammoth fundraising task! They are using their indoor bikes to ride from John O’ Groats to Lands End – a total of just under 1000 miles!
Sam, Euan’s Mum, describes what their days in isolation look like whilst also juggling their cycling challenge…
“It’s now been 6 weeks since we started self-isolating. We are now able to book supermarket deliveries so we don’t have to risk going to shops at all anymore. Friends have picked up prescriptions and a neighbour does a weekly trip to the butchers. We just go out occasionally for bike rides. We are fortunate to have a big garden so it doesn’t feel like we’re too cooped up.
Each day, while Mike is working from home, I do some of the familiar things that Euan would do at school, for example starting each morning with the song of the day (also helpful for keeping track of which day of the week it is!) We might do some baking in the morning while Euan is in his standing frame, and then enjoy some story massage before lunchtime. In the afternoon, we might do something creative or plant some seeds. Everything is a sensory experience, so we will smell and taste baking ingredients, feel the compost and listen to the sound of shaking the seeds.
We try to have something scheduled each day to plan around – I have discovered lots of groups which are now offering Facebook Live events, including story massage, dance and sensory music sessions. It’s great to have access to things which are specifically for children and young people with PMLD (profound and multiple learning disabilities). We are also looking forward to the first online ‘Band Practice’ this week with Ray, the music therapist at the Treehouse.
Euan’s teachers have provided some resources and ideas of things to do as well as some recorded messages. Friends have also recorded themselves reading a story for him. We are also enjoying weekly Zoom get-togethers with family which has been a real positive as we all live far apart. It’s lovely for Euan to hear familiar voices.
Once Euan is in bed, we might do an hour on the turbo trainers for our JOGLE challenge – I bring my bike into the living room so I can watch the TV, mainly comedy box sets, while Mike does his in the garage! A month in and we are still in Scotland. The girls and I have done 250 miles and our route has taken us through the Cairngorms past Balmoral, and we have reached Glenshee. Mike has done about the same distance but has taken a different route further west along Loch Ness and has just cycled through Glencoe. Thank you to everyone who is supporting us.
It’s difficult to think ahead to when we might feel confident to go out and about and meet friends in person again. For now, we are enjoying the slow pace of life and spending quality time with Euan, and praying that all our Treehouse friends stay safe and well.”
Donate to the Morley’s fundraiser.