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What is the MCN?

The East Anglia Children's Palliative Care Managed Clinical Network (MCN) is made up of health professionals and organisations working to ensure the co-ordinated and equitable provision of high quality, clinically effective services.

The network is a way of working where clinicians from all professions and sectors place their focus on patients and services rather than being constrained by organisational boundaries.

What is the focus?

The MCN incorporates organisations which supports families throughout their experience of caring for children and young people with life-threatening illnesses and those with complex health care needs.

The MCN promotes partnership, working with others to increase the provision across East Anglia of palliative care services which are of high quality and meet the needs of children, young people and their families.

Where does the network cover?

Currently the network covers Cambridgeshire, North and West Essex, Norfolk, Peterborough and Suffolk.

What are the Network’s functions?

The Network's functions are to:
  • Strengthen clinical leadership and increase awareness across the clinical community of the importance and contribution of evidence based children's palliative care.
  • Develop, disseminate and audit of well defined consistent and evidence based approaches to care in key areas of practice (emergency health care plan, syringe driver management and symptom management guidance).
  • Increase capacity and expertise in the children's workforce through an inclusive palliative care education and training programme
  • Provide access to specialist medical advice which is available at any time of the day or night.

How does it work?

A Clinical Steering Group (CSG) of palliative care professionals provides expertise and clinical leadership to the MCN, including acting as champions for paediatric palliative care in local geographical areas and networks.

The CSG meets up to four times a year to undertake development work by lead professionals working in organisations within the MCN. The group is supported by a MCN Co-ordinator.

You can read more about the work the MCN is involved in on our 'Projects' page.

  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS

Milton

Church Lane, Milton,
Cambridge, CB24 6AB

Quidenham

Quidenham , Norwich,
Norfolk, NR16 2PH