The East of England Children and Young People's Palliative Care Service Directory click here
This directory contains contact details and a brief description about the services provided by organisations in the Eastern Region for children and young people who have been diagnosed with life limiting or life threatening conditions. The directory is primarily for families and carers, however it is also a useful resource for professionals working within palliative care.
This booklet has been written for parents and carers of children receiving palliative care. The booklet is to give them information about commonly occurring symptoms, their causes, available treatments and suggestions for simple things that can be done at home to help their child. It also includes information on services available and an explanation of how care should be organised with them. Written by Alison Dowsett and the Paediatric Oncology Palliative Care Team (Cambridge University Hospitals Foundation Trust) in collaboration with CCLG Publication Committee, this can be downloaded from the above website.
NHS West Midlands e-learning resource on Paediatric Palliative Care click here
This e-learning package is based on the RCPCH Curriculum in Paediatric Palliative Medicine prepared by the Education Subgroups of the British Society for Paediatric Palliative Medicine and the Association of Children's Hospice Doctors. The project has been designed to enhance the training and education required to deliver high quality paediatric palliative care wherever the child or young person and their families happens to be. You are free to view these materials without taking the assessment, all you need to do is register yourself.
Together for Short Lives click here for website
Together for Short Lives is the UK charity for children with life-threatening and life-limiting conditions and all those who support them. The website provides help for families, services and professionals including details of events and training, resources, and care pathways.
Hospice UK click herefor website
Hospice UK is the UK charity for hospice care. The website provides information and support for patients, carers, and those with an interest in hospice and palliative care.
Palliativedrugs.com provides independent information for health professionals about drugs used in palliative care. It includes unlicensed indications and routes, and details about the administration of multiple drugs by continuous subcutaneous infusion.
Leader Alliance for the Care of Dying People - Interim Statement 2014
Click here for further information: Joint statement by the Leadership Alliance for the Care of Dying People and LACDP Interim Statement
An Evaluation of an Innovative Service Approach to the Provision of 24/7 Care and Support in Children's Palliative Care, Dr Linda Maynard, 2012
This 2012 study evaluated a new service, funded by a national charity and hosted by a children’s hospice service, providing 24/7 care for children with life-threatening and life-limiting conditions and their families. Objectives of the service were to provide: symptom management support; open access to families and professionals; choice in place of care and death and collaborate with others to develop common approaches, shared pathways and management plans. Findings demonstrated that the Team filled a critical gap and met its pre-set standards. Families valued the role which enabled choice in location of care and perceived the Team as a lifeline.
The EACH Library, based in Milton in Cambridge, is a specialist collection of around 2,500 resources, relating to all aspects of caring for children with severe disabilities, complex health needs and life limiting conditions.
With a web based catalogue and related pages, the library is available to staff working in the NHS, Social Care, Education or Voluntary sectors in East Anglia.
Membership is free and all members have access to services that include:
- Browsing & requesting resources via the online catalogue
- Renewing resources online
- Ordering of journal articles
- Requesting work related literature searches
Advice on accessing NHS electronic resources
Contact the library for a registration form and more details:
Librarian – Sue Langley
Tel: 01223 815103 Fax: 01223 863871
East of England Libraries Network
East of England Health Libraries is a network of 29 NHS libraries in the east of England. It provides free access to books, journals and online resources to all NHS staff and students.
All health and social care staff, including non-clinical,managerial, administrative and clerical staff, and students on placement, are welcome to use whichever of the EEL libraries is most convenient to them. EEL covers Norfolk, Suffolk, Cambridgeshire, Essex, Bedfordshire and Hertfordshire.
EACH Current Awareness click here
The latest books, reports and journal articles available from East Anglia's Children's Hospices (EACH) Library & Information Service.You can search the blog by date or by topic