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MCN Guidelines

The MCN is gradually developing a library of local and national guidelines and care pathways currently in use in East Anglia. Examples and links will be available through this page.

British National Formulary for Children (BNFC)

British National Forumlary for Children provides up to date information on using medicines to treat children to the following groups: prescribers; pharmacists; other healthcare professionals. The 2012-2013 edition is now available.

APPM Drug Formulary 2012 (2nd Edition)

The first edition of the Association for Paediatric Palliative Medicine Master Formulary, published in January 2011 was the first significant attempt to collate all available dosing information to support prescribing in paediatric palliative care in a single volume.This second edition takes into account feedback from users of the first edition of the Master Formulary.

East of England Paediatric Oncology & Haematology Palliative Care Pathway 2011

The key principles of the East of England Paediatric Oncology & Haematology Palliative Care Pathway (2011) are to provide: continuity of care and good communication between all professionals; clearly defined roles; 'integration' not 'referral' between agencies; shared information between agencies; and shared documentaion and audit of practice.

Together for Short Lives - Research Abstracts 2014

Together for Short Lives provides a unique international children's palliative care abstracts service for all members and stakeholders. It is the only service of it's kind, bringing together all the latest research abstracts of relevance to professionals working with babies, children and young people with life-threatening or life-limiting conditions.

Our team of children's palliative care experts search for the latest relevant research, published worldwide on a twice yearly basis. Our archive of children's palliative care research abstracts dates back to 2000. It's a great tool to support your practice, research and project development - especially helpful for identifying information about rare and obscure topics wthin this speciality.

Research abstracts are published in an abstracts collection called Synopsis (previously called PaedPalLit) and are grouped under seven themes. Please click here for further information.

Together for Short Lives - Basic Symptom Control in Paediatric Palliative Care 9th Edition

Is a key clinical tool used by childrens palliative care doctors and nurses across the world. It is the only resource of its kind that provides comprehensive guidelines for treating a wide range of symptoms experienced by children with life-limiting or complex health conditions.

It is now in its ninth edition, and has become known as the symptom control 'industry bible' for professionals working in the field.

Basic Symptom Control in Paediatric Palliative Care

is packed with information about how to appropriately treat a wide range of symptoms including: infections, nausea and vomiting, seizures and muscle spasm, as well as pain management. The new updated edition reflects the changes and developments in children's palliative care, as well as seeking to address gaps in guidance on key topics.

Please click here for link

  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS

Milton

Church Lane, Milton,
Cambridge, CB24 6AB

Quidenham

Quidenham , Norwich,
Norfolk, NR16 2PH