The work plan for the MCN sets out to work with practitioners locally and regionally to implement / cascade work. We've assisted in the implementation of the following projects.
Resuscitation Plan (East of England Strategic Clinical Networks)
Work led by Pat Sartori (Consultant in Paediatric Palliative & Supportive Care, Addenbrookes Hospital) and Lucy Andrews (Well Child Nurse, Addenbrookes Hospital). This is an agreed plan designed to make communication easier in the event of a health care emergency for children up to 16 years with life limiting conditions. The plan is simple, agreed by parents and is for use in all environments that a child uses. It's design and principles have been widely consulted upon within the region.
Please click onto the following links for the documentation:
Prescription and Administration Record for Continuous Subcutaneous Infusion
Work led by Lucy Gosling (Clinical Nurse Specialist, East Anglia’s Children’s Hospices - Ipswich). A multi-agency debrief held following a child's death revealed a number of issues using the syringe driver documentation in place at that time - due in part to the number of nurses involved from different organisations. As a result, a multi-organisational working group was formed to develop a consistent approach to syringe driver management across the East of England. The documentation developed includes prescription, set up, and a medication balance sheet.
Sympton Management Planning for Children's Palliative Care
Good symptom management planning has been shown to reduce the need for out of hours support as practitioners have considered in advance and prepared families and other carers how a child's symptoms may progress and have a plan in place to deal with them. This is particularly important if the child is cared for in the community.
Symptom management planning for children's palliative care is a skilled task - developed based on good assessment, sound clinical judgement and specialist knowledge. The plan considers 'probability rather than certainty'. An effective plan may take hours of preparation, but the potential impact is considerable. Parents reassured that there is a 'next step' and their child should not 'suffer' due to symptoms that are out of control; professionals equally reassured that they have one agreed plan to follow.
Click on the following links: