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Projects

The work plan for the MCN sets out to work with practitioners locally and regionally to implement / cascade work. We've assisted in the implementation of the following projects. 

Resuscitation Plan (East of England Strategic Clinical Networks)

Work led by Pat Sartori (Consultant in Paediatric Palliative & Supportive Care, Addenbrookes Hospital) and Lucy Andrews (Well Child Nurse, Addenbrookes Hospital). This is an agreed plan designed to make communication easier in the event of a health care emergency for children up to 16 years with life limiting conditions. The plan is simple, agreed by parents and is for use in all environments that a child uses. It's design and principles have been widely consulted upon within the region.

Please click onto the following links for the documentation:

Prescription and Administration Record for Continuous Subcutaneous Infusion

Work led by Lucy Gosling (Clinical Nurse Specialist, East Anglia’s Children’s Hospices - Ipswich). A multi-agency debrief held following a child's death revealed a number of issues using the syringe driver documentation in place at that time - due in part to the number of nurses involved from different organisations. As a result, a multi-organisational working group was formed to develop a consistent approach to syringe driver management across the East of England. The documentation developed includes prescription, set up, and a medication balance sheet. 

Sympton Management Planning for Children's Palliative Care

Good symptom management planning has been shown to reduce the need for out of hours support as practitioners have considered in advance and prepared families and other carers how a child's symptoms may progress and have a plan in place to deal with them. This is particularly important if the child is cared for in the community.

Symptom management planning for children's palliative care is a skilled task - developed based on good assessment, sound clinical judgement and specialist knowledge. The plan considers 'probability rather than certainty'. An effective plan may take hours of preparation, but the potential impact is considerable. Parents reassured that there is a 'next step' and their child should not 'suffer' due to symptoms that are out of control; professionals equally reassured that they have one agreed plan to follow.

Click on the following links:

  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS

Milton

Church Lane, Milton,
Cambridge, CB24 6AB

Quidenham

Quidenham , Norwich,
Norfolk, NR16 2PH