Fleur’s ‘incredible’ legacy to continue as music fundraiser returns

Fleur’s ‘incredible’ legacy to continue as music fundraiser returns

Jun 07, 2019

Music for a Summer Evening, the popular fundraiser that has helped raise over £131,000 in memory of eight-day-old Fleur Clemence, returns next month.

The event was set up by Fleur’s parents, Charlotte and Grant, following the death of their twin daughter eight years ago. It takes place in the grounds of the family’s home in Little Hallingbury and raises money for EACH, and will be on Saturday, 6 July this year.

Charlotte gave birth to Fleur and Sophia on 4 May, 2011. She and Grant knew Fleur would not live for long as a rare heart condition - hypoplastic left heart syndrome - had been detected at Charlotte’s 20-week scan.

It meant the left ventricle of Fleur’s heart was severely underdeveloped and her aorta too small to pump blood around her body effectively.

The family went home for their precious few days together and EACH staff visited to help with care and memory-making.

Although ​our fundraising staff are now organising the event, it will continue to take place at the home of Charlotte, who works in interior design, and Grant, in insurance, and who are also parents to Nancy Victoria.

Doors to the grounds of Little Hallingbury Place, in Wrights Green Lane, will open at 6pm, with entertainment getting under way from 7pm. Tickets are £15 for adults and £10 for those aged 12 and under, and available at www.each.org.uk/musicforasummerevening.

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  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS


Church Lane, Milton,
Cambridge, CB24 6AB

The Nook

Pigot Lane, Framingham Earl
Norfolk, NR14 7PX