Research into parents’ experiences

Research into parents’ experiences

Nov 27, 2017

Tom Mundy photo_WEBHello! My name is Tom Mundy and I am a Trainee Clinical Psychologist from the University of East Anglia. I am looking to explore parents’ experiences, both at EACH and in everyday life, through a research study. This study would like to speak to parents who have come to EACH, and spoken about their story of caring for a child with a life limiting condition or life threatening condition at groups or events run by the hospice. We are also interested in parents more general experiences telling this story to other people outside EACH.

Taking part in the study is optional. If you are able to take part, I can conduct a single, one off research interview with you. The interview will last up to 90 minutes, and ask about your experiences of telling your story of caring for a child with a life limiting condition or life threatening condition, at groups or events run by EACH, as well as more generally in conversation with other people outside EACH. You will also be asked to complete a short questionnaire (asking your name, age and other basic personal information) as part of the study.

I am hoping that the results from this study will be used to inform the way that children’s hospice services are run, and potentially improve the support that is offered to parents at EACH and other hospice services in the future.

To find out more information about the study, please click on the link below to see the full study information sheet.

Study Information Sheet

If you think you might like to be involved in this study after reading the information sheet, or are unsure about anything, feel free to contact me at t.mundy@uea.ac.uk or call me on 07548 651067 and I would be more than happy to talk further with you.

Recruitment for the study is a time limited process, so if you are interested, please respond as soon as possible to ensure an interview can be arranged.

If you have any questions and would prefer to speak to someone within EACH, please feel free to contact EACH Family Comms Co-ordinator Rachel Wright - rachel.wright@each.org.uk, 01842 765121.


 


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  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS

Milton

Church Lane, Milton,
Cambridge, CB24 6AB

Quidenham

Quidenham , Norwich,
Norfolk, NR16 2PH