Hear from other families

Read below to find stories from families and their children and young people accessing our services.

We are always looking for new stories to illustrate our services and the impact they have on families across East Anglia. If you'd like to share your story please get in touch with Michael Jarvis in our Marketing and Communications Team on michael.jarvis@each.org.uk.

Eilish's Story

Eilish Mulholland was just four years old when she lost her brave 51week battle against an aggressive form of kidney cancer in October 2014. She was diagnosed with Wilms tumour, cancer of the kidney, in October 2013. After surgery and initial treatments of chemotherapy and radiotherapy it was clear that standard treatments were not working. Oncologists at Addenbrookes hospital worked tirelessly to find alternatives and Eilish was accepted on a clinical trail at The Royal Marsden; a world-leading cancer centre specialising in diagnosis, treatment, care, education and research.

Sadly Eilish’s cancer returned and the Mulholland family began working with ​EACH's Symptom Management Team. This specialist team deliver care and support 24 hours a day, seven days a week ensuring all eligible life-threatened children, young people and their families have access to support and advice. Together with the community care teams EACH put plans in place to so Eilish could remain cared for and comfortable at home until she sadly passed away on 13th October 2014. 

Eilish’s whole family have continued to receive support including her older brother Paul, who is seven, regularly attends sibling activities and receives art therapy at school once a week. 

Angela Mulholland, Eilish’s mum, said: “The care and support we have received from EACH has been invaluable to us - to ensure Eilish was as comfortable as possible and after she gained her wings to help us through a very difficult year. We desperately wanted to care for Eilish at home and this would not have been possible without the support of the Symptom Management Team and EACH.  Paul has been helped through a difficult time with his support at sibling days and art therapy. These sessions not only allow him to remember Eilish and to talk about her with someone who’s not family, but to help him learn how to carry on his life without his best friend.

The Symptom Management Team was formed in 2010, initially funded as a pilot scheme by the True Colour Trust to develop a 24/7 community based service. EACH decided to continue to fund this service from 2013. The service is seen, both regionally and nationally, as a pioneering service in children’s palliative and end of life care and this model has since been used as a basis for similar services across the country.   

Angela added: “Families need this team and staff at EACH to support them, not just with their child’s medical needs, but to help with the psychosocial impact an illness has on other family members."
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum

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