A rare and unique opportunity for families who have received care and support from EACH...

A rare and unique opportunity for families who have received care and support from EACH...

Dec 19, 2017
The All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care has launched an inquiry into the extent to which the government is meeting its end of life care choice commitment for babies, children and young people in England. This is a rare and unique opportunity for children, young people and/or family members to have their say, either online or in person.
 
This is really encouraging news and if you can, we urge as many people as possible to respond.
 
Online

This is a short online survey covering questions around:
  • the ability to exercise choice over care needed
  • what barriers exist to prevent choice and services
  • what opportunities there are for improving choice for young people and families.
Have your say: https://www.surveymonkey.co.uk/r/APPGCPCchoice  

In person

The APPG is holding an evidence session at The House of Commons on Wednesday 7th February between 9.30 and 11.30am (Committee Room 20).
 
Please email james.cooper@togetherforshortlives.org.uk if you would like to be considered as a witness to provide oral evidence or as an observer in the gallery – or call your local EACH Service Manager to find out more. EACH will reimburse any travel expenses, if not provided for by the APPG.
 
EACH’s response

EACH is:
  • submitting a comprehensive written response
  • asking to be considered as a witness to provide oral evidence for care providers and in relation to palliative care workforce
  • urging as many young people and families to provide their own unique insight to this vital inquiry.
     
 


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  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS

Milton

Church Lane, Milton,
Cambridge, CB24 6AB

Quidenham

Quidenham , Norwich,
Norfolk, NR16 2PH