Hear from other families

Read below to find stories from families and their children and young people accessing our services.

We are always looking for new stories to illustrate our services and the impact they have on families across East Anglia. If you'd like to share your story please get in touch with Michael Jarvis in our Marketing and Communications Team on michael.jarvis@each.org.uk.

Ollie's Story

Ollie Duell, 12, lives with a complex medical condition that affects his bowel and stomach. In October 2010 he underwent a transplant of those vital organs, but it was ultimately unsuccessful as Ollie’s body rejected the new tissues in 2014.

It means Ollie needs to be attached to several tubes to help with breathing, feeding and more. He is also attached to a pump 22 hours a day and requires 36 medicines four times a day plus four lots of intravenous drugs.

In addition, Ollie also has an underactive thyroid, juvenile arthritis and sleep apnoea. He can walk short distances, but often needs an electric wheelchair.

These impediments mean Ollie can only attend his North Cambridge Academy three times a week for three hours at a time. He also has two two-hour homeschool sessions a week.

Ollie’s family have been on a journey full of ups and downs, but one constant source of positivity and support has been EACH. Ollie first visited our Milton hospice aged just three. He now benefits from two or three day-long care sessions each month and also enjoys hydrotherapy to alleviate pain in his joints.

Carer and sibling groups at the hospice mean Ollie’s parents, Claire and Gavin, and his sister, Georgina, 18, are also supported. The family live in Cambridge and Claire explains just how much their local hospice means to them.

"Knowing Ollie is being looked after by the amazing team at EACH means we can have some time off and not worry, which is the most brilliant feeling ever! We also really enjoy meeting other families and being able to talk through what life is like for us all.

"EACH enables us to be a family, providing care and support for us as a whole. Having a safe place for Ollie to be cared for is the most valuable gift we could ever have been given. Ollie loves spending time at the hospice and the minute he gets there he is kicking off his shoes, getting a duvet and snuggling down on the sofa, with everyone running around seeing to his every need! As he says: ‘It's bliss!’

"Without EACH I really don't believe we would have made it this far together as a family. They make a really hard time just that little easier to deal with."

Ollie is very excited to see 42nd Street (attending on 4th April 2017) and recently showed off his own musical credentials at EACH’s Christmas party when although naturally shy he decided to stand up and sing for guests, prompting tears from his family and members of ​our care team who have been with them through their journey.

  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS

Milton

Church Lane, Milton,
Cambridge, CB24 6AB

Quidenham

Quidenham , Norwich,
Norfolk, NR16 2PH