MCN Clinical Steering Group

MCN Clinical Steering Group

May 12, 2014
The MCN Clinical Steering Group met on Thursday 1 May 2014. The group discussed the Specialist at all Times Model, which is to be continued into 2014/2015. Since the launch date of the 1 October 2013 there have been 18 calls taken which have been invaluable to the EACH TCT Nurse Specialists. The aim of the model is to ensure that appropriate and timely specialist children's palliative care advice is available to the EACH TCT team outside of office hours. These are 18.00hrs to 08.00hrs Monday to Friday and 24 hours over weekends and bank holidays. 

Also discussed was the Education and Training strategy, for 2014. (please see our Education section for further details.) There were updates on the Resuscitation Plan - formerly Emergency Health Care Plan, which has been approved by the Strategic Clinical Network. They are starting to cascade this. 


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  • I can’t imagine what it would have been like. Nobody should have to, every family should be offered the support we were, and are still getting Claire, Jacob’s mum
  • EACH helps us to create lovely memories and has played an important part in all of our lives, not just Lucy’s. Heather, Lucy’s mum
  • EACH supports families when they’re at their absolute lowest, helping them to come to terms with their child’s illness, losing them and beyond Brad, Stanley's Dad
  • The play specialists are excellent and I also get inspiration from the activities they organise. Heather, Lucy’s mum
  • Renee loves going to The Treehouse, but it’s great that care staff are also able to visit us at home too. Stacy, Renee’s mum
  • We arrived at the hospice feeling scared and alone. We had so many questions – they answered them all and more. Claire, Jacob’s mum
  • I didn’t realise hope was a gift until I became a mum. My little boy taught me many things and that was one of them Claire, Jacob’s mum
  • When we first heard about the hospice we were apprehensive because we didn’t know what to expect. When we got there we realised it was a lovely place where Renee would be well looked after, and we would be able to have a much-needed break. Stacy, Renee’s mum
  • EACH helped us with coping mechanisms and special ways of remembering Stanley. Brad, Stanley's Dad
  • It’s been a great opportunity to meet other parents in a similar situation, something that doesn't really happen anywhere else. Helen, William’s mum
  • We are also supported by the 24/7 True Colours nurses and it’s so reassuring knowing we can call on them whenever we need support or advice Helen, William’s mum
  • Children like Lucy don’t get the opportunity to go to sleepovers or to their friends for tea, so the interaction she has at the hospice is priceless. Heather, Lucy’s mum
  • I really love going to the hospice. I’ve made friends there and get to do loads of fun stuff. Renee
  • EACH has helped us keep Stanley’s memory alive. And allows us to look to the future Brad, Stanley's Dad

The Treehouse

St. Augustine’s Gardens,
Ipswich, IP3 8NS

Milton

Church Lane, Milton,
Cambridge, CB24 6AB

Quidenham

Quidenham , Norwich,
Norfolk, NR16 2PH