On 10th October five parents met with EACH staff including the Senior Care Leadership Team and Chief Executive Graham Butland for the annual joint Family Forum. This event is always a great opportunity for EACH staff to hear feedback from parents and to share developments within the organisation.
Graham Butland, CEO of EACH, talked about the developments within the organisation including: restructuring the senior management team to build for growth, fundraising for the nook and the increased income from retail.
Legal Information for families
Caroline Barrett, a solicitor from Irwin Mitchell, attended the day and explained to the group about where they could find important information including rights, local offers, education, benefits and what services other organisations provide. The group discussed additional information and support that would be helpful. We will look to see if there is more information that we can provide and also if it is possible to run a drop in clinic in conjunction with Irwin Mitchell.
The group discussed Family Corner and its benefits. Rachel Wright reported that hits on the family zone section of EACH’s website had increased. The group discussed the text messaging service and the benefits of having reminder texts.
Tracy Rennie talked about care delivery and explained the progress that was being made with regard to training of staff and reintroducing care to children with long term ventilation needs. The group noted the problems of recruitment to nursing posts due to the national shortage of nurses. The group acknowledged the benefits of family networking and the possibility of having more events where families can get together for mutual support.
The parents asked for two points to be considered following the review of the choir earlier in the year.
One was to consider allowing family members of young people who have reached the upper age limit of 19 years to be able to continue as members. We have considered this and need to confirm that EACH provides care to young people up to the age of 19 years and their families. After this time families are unable to access EACH services, this would include the choir.
The second query was whether the choir, now known as VoicesAloud, would be able to perform in public at the Ipswich Carol Service. This is held at the church in our local hospice community. It was noted that the purpose of the choir is to provide wellbeing support through music and not for fundraising or awareness raising purposes. It was agreed that that this request would be considered, the result of which is that VoicesAloud will be able to perform at the Carol Service should they so wish.
The group discussed transition into adult services and one parent shared her personal experience and how very tough this process can be. We have recently appointed a Young Persons and Transition Lead to help families with this process, and in addition we will look at how we can help to make this transition much better for families.
For more information about Family Forums and how you can get involved, please click here. Future dates will be advertised in Family Corner.